Directory of Incontinence Resources

The term incontinence refers to involuntary or accidental loss of either urine (urinary incontinence) from the bladder, or bowel motion (bowel incontinence).

Seven Types of Urinary Incontinence

Here’s some help to determine if your parent has an incontinence problem:

• Transient incontinence is typically the result of a temporary change such as urinary tract infection, medications, or severe constipation.
• Stress incontinence is most common in women whose bladder muscles are weakened.
• Overflow incontinence is the type of incontinence more common in elderly men who may have enlarged prostate glands.
• Urge incontinence causes people to feel an “urgent” need to urinate due to muscle spasms in the bladder.
• Total incontinence means urine leaks constantly; it is usually caused by injury.
• Mixed incontinence, in which there are several factors or causes involved, is alsopossible. For example, many older women suffer from both urge and stress incontinence.
• Psychogenic incontinence is the loss of urinary control caused by the person’s emotional state.

Fecal incontinence

he loss of control of bowel movements. It can range from an occasional leakage of a small amount of stool to complete loss of bowel control. Constipation and diarrhea can cause fecal incontinence.

While incontinence may cause embarrassment, it is actually quite common. Fortunately, there are a number of advocacy groups, organizations, & government agencies dedicated to managing and treating incontinence. These groups contribute vast amounts of knowledge, resources, information, and support, as seen below:

Urinary Incontinence

• ACOG Urinary incontinence: https://www.acog.org/womens-health/faqs/urinary-incontinence
• American Urological Association (AUA): https://www.auanet.org/
• American Urological Association–Urology Patient education materials: http://www.urologyhealth.org/educational-materials
• American Urogynecologic Society: http://www.augs.org/
• Association for Pelvic Organ Prolapse Support (APOP): https://www.pelvicorganprolapsesupport.org/
• Below Your Belt: https://belowyourbelt.health/
• Change Together: https://www.changetogether.com/
• Continence Central: http://www.continencecentral.org/
• Consult Geri: https://consultgeri.org/patient-symptoms/unable-control-urine
• Diaper Bank Listing for US: http://www.healthcentral.com/incontinence
• Effective Management of Urinary Incontinence in Long-term Care Facilities Manual: http://healthinsight.org/Internal/assets/Nursing%20Home/INCONT%20-%20UI%20Final.pdf
• Five Million Friends: http://5milfriends.users5.50megs.com/
• Geometry.net Incontinence: http://www.geometry.net/health_conditions/incontinence.php
• Guideline : Urinary Incontinence: http://www.paltc.org/product-store/urinary-incontinence-cpg
• Guideline: Urinary Incontinence: https://www.guideline.gov/content.aspx?id=47099
• ICN Network: https://www.ic-network.com
• International Continence Society (ICS): http://www.ics.org
• International Urogynecological Association: http://www.iuga.org
• Interstitial Cystitis Association of America (ICA): http://www.ichelp.org
• Journal of Female Urinary Incontinence: http://www.jinuf.org.br/ing/indexen.htm
• Liberty: http://www.libertyfromincontinence.com/index.html
• MedMark Urology Links: http://www.medmark.org/uro/urol.html
• National Institute of Diabetes and Digestive and Kidney Diseases: https://www.niddk.nih.gov/
• National Institute on Aging (NIA): http://www.nia.nih.gov
• NIDDK Urinary incontinence in men: http://www.niddk.nih.gov/health-information/health-topics/urologic-disease/urinary-incontinence-in-men/Pages/facts.aspx
• Practical Management of Urinary Incontinence in the Long-Term Care Setting: http://www.annalsoflongtermcare.com/attachments/5367.pdf
• Pull-Through Network: http://www.PullthruNetwork.org
• Simon Foundation: https://simonfoundation.org/
• Social Security Disability Resource Center: http://www.ssdrc.com
• SUNA - Society of Urologic Nurses and Associates: https://www.suna.org/
• Underactive Bladder Foundation: http://www.underactivebladder.org
• University of Texas Southwestern Medical Center - Incontinence Info: http://www.utswmedicine.org/conditions-specialties/urology/general/incontinence.html
• Urinary Incontinence in Children: https://www.niddk.nih.gov/
• Urinary incontinence in men: http://www.niddk.nih.gov/health-information/health-topics/urologic-disease/urinary-incontinence-in-men/Pages/facts.aspx
• Urinary incontinence in women: http://www.niddk.nih.gov/health-information/health-topics/urologic-disease/urinary-incontinence-women/Pages/facts.aspx
• Urinary Incontinence Toolkit: http://www.gericareonline.net/tools/eng/urinary/
• Urological Associates: http://urological.com/
• Urology Care Foundation: http://www.urologyhealth.org/
• Urology Nurses Online: http://www.duj.com/unohome.html
• Virginia Urology Center, The: http://www.uro.com/
• Women's Health: https://www.wdxcyber.com/mincont.htm
• World Federation of Incontinent Patients (WFIPP): https://wfipp.org

Fecal Incontinence

• About Incontinence: https://aboutincontinence.org/
• American College of Gastroenterology: http://patients.gi.org/gi-health-and-disease/
• American College of Gastroenterology: https://gi.org/patients/gi-health-and-disease/
• Association for the Bladder Exstrophy Community (A-BE-C): https://www.bladderexstrophy.com/
• Bowel Control Awareness Campaign: http://www.bowelcontrol.nih.gov/
• Fecal Incontinence in Nursing Home Resident: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2614622/
• IBS Impact: http://www.ibsimpact.com/
• IBS Tales: http://www.ibstales.com/
• International Children’s Continence Society: http://i-c-c-s.org/
• International Foundation for Gastrointestinal Disorders: https://www.iffgd.org/
• International Painful Bladder Foundation: http://www.painful-bladder.org/
• Medhelp: https://www.medhelp.org/
• NIDDK Fecal incontinence: http://www.niddk.nih.gov/health-information/health-topics/digestive-diseases/fecal-incontinence/Pages/facts.aspx
• Paraquad: http://www.paraquad.org/
• The North American Restroom Association: http://www.americanrestroom.org
• Youth Rally: http://www.youthrally.org
• Consult Geri: https://consultgeri.org/patient-symptoms/unable-control-stool

Ostomy Links

• Friends of Ostomates: http://www.fowusa.org/
• GoodHealthwill: https://www.goodhealthwill.org/
• Ostomy Pockets: https://ostomypockets.com/
• United Ostomy Associations of America: https://www.ostomy.org/
• Wound, Ostomy and Continence Nurses Society (WOCN): https://www.wocn.org/
• Wound, Ostomy and Continence Nurses Society Core Curriculum - Continence Management: http://www.lww.com/Product/9781451194418

Medical Links

• All Nurses: http://allnurses.com/
• Alzheimer's Association: http://www.alz.org/
• AMA - American Medical Association: https://www.ama-assn.org/
• American Academy of Pediatrics: http://www.aap.org/en-us/Pages/Default.aspx
• American Cancer Society: https://www.cancer.org/
• American Childhood Cancer Society: http://acco.org/
• American College of Obstetricians and Gynecologists (ACOG): https://www.acog.org/
• American Diabetes Association: http://www.diabetes.org/
• American Heart Association: http://www.americanheart.org/
• American Academy of Pediatrics: http://www.aap.org/en-us/Pages/Default.aspx
• American Red Cross: http://www.redcross.org/
• Aquatic Rehabilitation: http://my.clevelandclinic.org/services/rehabilitation-sports-therapy/specialty-therapy-services/aquatic-rehabilitation
• Ashby Memory Method: http://www.alzheimersinnovation.com/
• BIG EYE's Medical and Disability Resources: http://www.bigeye.com/disabili.htm
• Cambridge Health: http://www.cambridgehealth.org/
• CDC Office on Disability and Health: https://www.cdc.gov/ncbddd/dh/
• Center for Hyperhidrosis: http://www.sweaty-palms.com/
• Christopher Reeve Paralysis Foundation: http://www.apacure.com/
• Contract Physical Therapy: http://www.synertx.com/
• Disability Related Products/Services: http://www.eskimo.com/~jlubin/disabled/cmpyinfo.htm
• Disease Resources: http://www.disease-resources.com/
• Doctors Without Borders: http://www.dwb.org/
• Family Friendly Fun and Special Needs Resources: http://www.family-friendly-fun.com/index.htm
• Hardin MD: http://www.lib.uiowa.edu/hardin/md/index.html
• HealingWell.com: http://www.healingwell.com/
• Health Channels: http://www.healthcommunities.com/
• Healthlinks.net: http://www.healthlinks.net/
• Homecare Online: http://www.nahc.org/
• Irritable Bowel Syndrome Group: https://www.ibsgroup.org/
• Mayo Clinic: https://www.mayoclinic.org/
• NAELA: https://www.naela.org/
• National Association for Home Care and Hospice: http://www.nahc.org/
• Nursing Home Abuse: http://www.nursinghomeabuse.net/
• Obgyn.net: http://www.obgyn.net/
• SageMinder: http://www.sageminder.com/
• Salvi Law - Embrace Your Space: https://www.salvilaw.com/embracing-your-space/
• Soiling Solutions: http://www.encopresis.com/
• Special Needs Family Fun: http://www.specialneedsfamilyfun.com/
• The Conversation Project: http://theconversationproject.org/

Other Links

• Born to Love: http://www.borntolove.com/d-list1.shtml
• Caregiver Action Network: http://caregiveraction.org/
• Choice and Preference Toileting Assistance (CAPTA) Training Manual: http://www.cas.miamioh.edu/bridgeproject/capta_manual.htm
  Additional information can be found here: http://www.cas.miamioh.edu/bridgeproject/capta_schedule.htm
• CMS State Operations Manual, Interpretive Guidelines for F-315: https://www.cms.gov/Regulations-and-Guidance/Guidance/Manuals/downloads/som107ap_pp_guidelines_ltcf.pdf (pages 266-301)
• Families for Depression Awareness: http://www.familyaware.org/
• Financial Aid for Disabled Students: https://www.onlineschools.org/financial-aid/disabilities
• Find a Urogynecologist Tool: http://www.findurogynecologist.com/
• Guardian Nurses: https://www.guardiannurses.com/
• Hartford Institute for Geriatric Nursing: https://consultgeri.org/patient-symptoms/unable-control-urine
• HealthFinder.gov: https://health.gov/myhealthfinder
• Healthy Women: https://www.healthywomen.org/
• Incontinence Management Training Module: http://www.mc.vanderbilt.edu/root/vumc.php
• Incontinence Resource Manual: http://www.shoppathwayhealth.com/f315-incontinence-quickpath/
• Managing Life with Incontinence: http://www.managinglifewithincontinence.org/
• National Association for Continence (NAFC): http://www.nafc.org/
• Save on Medical Bills: https://www.medicalcostadvocate.com
• Senior Magazine: http://www.seniormag.com/index.html
• SpinalCord: http://www.uab.edu/medicine/sci/
• Worldwide Cloth Diapering Resources: http://www.borntolove.com/d-list1.shtml

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